Friday, December 13, 2013


Today has been one of THOSE days. My girls decided to wake up shortly after daddy left for work. I am currently fighting the cold from HADES, and I really, REALLY wanted to sleep in...

Normally, I would have just left them to play in their room, but today they decided that it would be way more fun to bang on the door screaming and babbling loudly until I opened it for them. I found a familiar scene...the freshly folded clothes I'd JUST gotten back into their drawers strewn about the floor and the two of them had taken up a post sitting on top of one of the drawer bins turning on and off the lights...

TGIF!!!! That is all I can say...and with a beginning like that, you can guess that so far its been QUITE the day.

We had a meeting with an Occupational Therapist this morning to have Faith evaluated for sensory issues. She ended up watching her for about 30 minutes and how she interacted and asked me a few questions....the ones that I feel like I've answered a million times...but I also know that unless they hear it directly, it didn't necessarily get heard at all.  I do feel like she gave me some successful pointers to help Faith in the interum until she is able to complete her official evaluation.

Faith does have issues functioning in large group scenarios. She clings tightly to my legs and screams and cries until I take her out of the "scary" situation, she tries to hide somewhere quiet, or she tries to escape...and the problem with that last one is that when she escapes, because she doesn't answer to her name when she is called, it is quite difficult to locate her. She escaped nursery at church one Sunday and  I had 4 sweet sisters and a few bretheren trying to help me find her...After about 30 minutes of heart attack, she was found crouching under the water fountains... I was seriously so afraid she'd gotten out of the building, everyone was calm and reassured me that they didn't believe ANYONE in their right mind would open the door for a 2 year old to run away unattended...thank heavens for calm people because I was anything but! ...Fast forward though to the OT's suggestion. 

I had mentioned that when things seem to get loud in the house, Faith has a tendency to take her favorite toy and hide under the table until the sound dies down. She also did this at my sister's house over Thanksgiving, or, if the front door wasn't closed all the way because of kids going in and out of the house, she would try to run away out the front door. The OT suggested purchasing an indoor play tent to be used as Faith's "quiet space". She said that she would wager that if Faith had a place to escape to when she was feeling overwhelmed, she would be able to cope better in large group scenarios and that she would be less inclined to try to escape out an open door. She said we could set it up in a high traffic area, and watch to see if she has gone in or out of it. So...we're in the market for a kids' tent...2 weeks from Christmas...all the shopping is done, and we now have one more thing to buy! Oh well...I think it will be well worth the money it costs to bring us some peace of mind. 

Next week, we meet with our team of evaluators to discuss the services Faith will be receiving here in Utah. The Speech Therapist and Autism Specialist weren't around the bush and said quite frankly after their visits that I would likely be seeing much more of them. Faith does have some sensory issues, but I wonder if its enough to warrant Occupational Therapy, time and our meeting next Friday will give me a more clear answer. We also have a nurse coming before that meeting to assess Faith's health and to do a vision and hearing next week will be all craziness (but then again, its the week before wouldn't be the week before Christmas without a little bit of crazy.)  

The good news is that we will FOR SURE have insurance starting January 1...which means I can call the pediatrician and make an appointment to not only get Faith's vaccinations updated (they couldn't update them at her last well child exam because they couldn't reach the doctor's office to get an updated list of vaccinations she'd already had.) and I can ask him for a referral to see a pediatric development specialist or developmental psychologist that is here in town (I know there is one...I've been referred to them before, but we'd JUST lost our insurance at the time, so I couldn't follow through with the appointment.) There is a clinic here in town that is ALL out of pocket expenses, but considering what I've heard from friends about the clinic, it will be much more than my family can afford. Waiting until we have insurance to cover the visit with us making a co-pay is going to be the best scenario option for us.

The initial visit for this out of pocket clinic that apparently has sliding scale fees is $200...and they don't even see your child the first visit...I can't even imagine how much the rest of the testing doctor runs it and the rest of the staff are people working towards a DMD...don't get me wrong, I know people studying medicine have to learn somewhere, but if I'm going to spend that kind of money out of pocket, I'd rather spend it at a clinic with an actual doctor on the case and have a chance of my insurance covering the bulk of it...Hopefully, we can get all of this figure out soon. I know I have several family members that are frustrated with me for waiting, but you can only do so much with what you have...and right now, though I wish we did have it, we DON'T have that kind of money to spend out of pocket all at once... 

In other life news, Jeff goes out of town next weekend, and may have to work until Christmas Eve...providing his plane back doesn't get delayed, we should have him back Christmas Eve night, but if his plane gets delayed...Well, lets just say I'm REALLY worried about it... Jeff was kind enough to remind me that he'd be getting paid double time for returning home on Christmas Eve...which will help cover a lot of bills we have coming our way, but it still is nerve wracking to not be sure if he will be home for Christmas or not...however, considering that his last employer didn't give two pennies about Christmas or ANY holidays for that matter, I should just be counting my blessings and feel fortunate that he has an employer that cares and is trying to make sure he can be home.

Also, other earth shattering events (well, to me anyway)...I gave myself my first insulin shot last night. There were tears, there was a near panic attack at the thought of sticking myself with a needle...but I got through it...I can do this! These injections mean a healthier me and a healthier baby, and I can't balk at either of those two options.

Also...when I was putting her down for a nap this morning at 10 AM, Phillie actually thanked me...I laid her on the bed, she looked up at me and said, "Tankooo", and rolled over to go to sleep...I guess that's what happens when you wake up at the butt crack of dawn and realize that you are so sleepy that you can't see straight when you're one year thank your mom for naptime. (I was very grateful for her little smile as she rolled over. She was VERY happy to be safe in her bed and able to take a nap.) 

All in all, life is life...

I am learning how to navigate the world of diabetic eating. As soon as I feel like I've got more of a handle on it, I promise that there will be meal plans coming again (because I know that is why most of you bother to read my word vomit. LOL) 

As always, hugs and loves until next time, darlings.

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